My Chris, My Hero

My only nephew,Chris (the son of my only sibling), passed away one year ago (at age 33) from complications of Multiple Sclerosis. We were extremely close and he was more like a son to me. I never had children but I could not have loved my own more than I did him.

My Chris was an exceptional person. He was sweet, kind, generous, loving, and compassionate. He was sensitive and thoughtful and always went out of his way not to hurt anybody's feelings.

Physically, Chris grew up to be a handsome man. He had a smile that could light up the corners of the darkest heart. His dimples ensured that women asked him out wherever he went. He was active and always had been. As a boy, he never saw a puddle that he didn't jump in or a creek that he didn't ride his bike through. He wore out a lot of bike tires and a lot of shoes.

Chris loved to tease everybody. My parents couldn't find him once when he was about 6. They went outside and called and searched everywhere. Just as they were about to get in the car to go look for him Chris yelled to them from the top of their garage. He had happily been watching them search. Nobody could ever be mad about his antics because he was so sweet.

Chris grew into a wonderful man who loved life and lived it to the fullest. He found a wife, a good job, married, and had two children. You never saw a better father. He was very proud of his children and would often call me asking me to come by and see them. Chris had been diagnosed with MS before he married but it gradually worsened to the point where he could no longer hold a job. Even though he could and did draw disability his wife pressured him to work. When she finally realized that he'd never work again and support her she left him and both children behind.

I won't go into details but Chris was not able to care for his children so his older sister adopted them. It was probably the hardest thing he'd ever done when he had to give up his parental rights. He still spent time with them and they would spend nights with him but losing custody broke his heart. He was eventually able to understand that he did what was best for his children.

Chris eventually ended up in a nursing home. That was a pain in my Soul that I can't describe but Chris made friends and everybody loved him. He flirted with the nurses and loved it when his kids visited. This continued until the day he ended up in the hospital where he had the most wonderful Dr. you can imagine. Even though he worsened every day Chris never lost his love of life.

Chris, I can finally celebrate your life after a year of horrendous pain. I love you as much today as ever. I celebrate your love, your being a father, your friendship and kindness, and your desire always to make people happy. I celebrate every moment God allowed me to have with you, every hug, every kiss, every diaper I changed, every Mountain Dew we shared. I miss you with every breath I take.

Chris, I celebrate you because you're my Hero. You never stopped smiling through the pain, you never complained, you never felt sorry for yourself. I wish I could say the same about myself but you took the best part of me with you.

I only survive the days because I know I'll see you again one day. Even now you remain my love, my life, the best part of me. You made me be a better person and there are no words for that.

National Multiple Sclerosis Society Needs Help

The National Multiple Sclerosis Society posted this on Facebook but we'd like to copy it in case anyone missed it. This is such an important issue so please help if you can.

"Thank you to everyone who wrote to your Senators, advocating for people with MS! If you haven't had a chance to send an email, there is still time. Senate passage of bill S.1273, is the last significant procedural hurdle to establish a national data system that tracks anonymous existing data on the epidemiology, incidence, prevalence and other factors of neurological diseases, including multiple sclerosis and Parkinson’s."

Go here and you will find a letter prepared for you to send your Senators. Simply fill in your information then click send. Thank you.

The facts about Multiple Sclerosis

"Multiple sclerosis (MS) is a potentially debilitating disease in which your body's immune system eats away at the protective sheath that covers your nerves. This interferes with the communication between your brain and the rest of your body. Ultimately, this may result in deterioration of the nerves themselves, a process that's not reversible.

Symptoms vary widely, depending on the amount of damage and which particular nerves are affected. People with severe cases of multiple sclerosis may lose the ability to walk or speak. Multiple sclerosis can be difficult to diagnose early in the course of the disease, because symptoms often come and go — sometimes disappearing for months.

Although multiple sclerosis can occur at any age, it most often begins in people between the ages of 20 and 40. Women are more likely to develop multiple sclerosis than are men."

"Although there is still no cure for MS, effective strategies are available to modify the disease course, treat exacerbations (also called attacks, relapses, or flare-ups), manage symptoms, improve function and safety, and provide emotional support. In combination, these treatments enhance the quality of life for people living with MS."

For more information, or to donate to fund research and treatment education, click here.

All information courtesy of MayoClinic.com and The National MS Society website. The National MS Society has been approved as a charity by the Better Business Bureau.